Please Contact Congress Today: Less Than 48 Hours Remain to Sign Dear Colleague Letter

Thursday, March 18, is the last day your Representative can sign onto the ALS RegistryDear Colleague letter , which requests Congress to continue funding for this vital research program. Please contact your Representative today and ask him/her to sign onto the ALS Registry Dear Colleague letter. You can contact your Representative from our website here: http://capwiz.com/alsa/home/. 

The National ALS Registry is a critical tool in the fight to find what causes ALS and how it can be treated and ultimately cured. And while Congress has funded the Registry in the past, our success this year will depend in large part on the number of Representatives who sign the ALS Registry Dear Colleague.

So please, contact your Representative TODAY and urge him/her to sign the Engel-Terry Dear Colleague letter. Let Congress know that people with ALS, who have no effective treatment option available, can't afford to wait.

Thank you!!

ALS Registry Dear Colleague letter
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Dear_Colleague__FINAL_.pdf

Additional information about the implementation of the National ALS Registry
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Update__March_2010_.pdf 

A Giving Spirit Foundation appreciates your efforts in helping to finding a cure for ALS!

2010 Mario Palumbo ALS Research Gala

There are many amazing organizations around the world whose mission is to find a cure for ALS.  Mario Palumbo ALS Research  is just one of them.

If you're in the Charleston, WV area on Saturday, March 13, we hope you'll attend!



The 2010 Mario Palumbo ALS Research Gala is being held March 13, 2010 at the Berry Hills Country Club in Charleston, WV. This event will include cocktails, hors d’ oeuvres, and both silent and live auction items donated from West Virginia businesses and music entertainment by pianist Bob Thompson.

This year the Mario Palumbo Ethics Award is being presented to Jed Smith. All proceeds from the Mario Palumbo ALS Research Gala will be applied to the funding of research efforts into finding effective treatments and a cure for amyotrophic lateral sclerosis (ALS or Lou Gehrig’s disease).

Sponsorship Opportunities:
Title - $10,000
Gold - $5,000
Silver - $3,000
Bronze - $1,500
Individual Tickets - $100

For more information, please call the MDA office at (304) 344-9807.

One Minute of Your Time Could Help To See $500,000 Go Toward ALS Research

In 2006, Susan Hills watched ALS take her father’s life. Now, she’s on a quest to give $500,000 for ALS research but she needs your help! She entered her dog, Jack Hills, in “The Cutest Dog in America” competition and needs your votes to help him secure a spot in the finalist bracket. If Jack wins the competition, Susan will give $500,000 of the prize money to The ALS Association for research!

There are only 3 weeks left of the competition, and each week a new finalist is selected.

Please, vote for Jack today and every day this week by visiting the site below.
http://www.cutestdogcompetition.com/vote.cfm?h=1368EA1F0EB642A3DFFE93B405815D75#

Help Susan and Jack create a world without ALS.

Watch Jack's video:
http://www.youtube.com/watch?v=w1os0ubEg1w

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