Wednesday, March 24, 2010

Move for ALS - 3600 miles, 2 bikes, 1 cause



Augustin Quancard says it best: "ALS is a terrible disease: no one deserves to suffer it. But with your help I believe we can make a significant impact on the search to find a cure."


That's why events like Move For ALS are so important.  These are just two guys who have decided to make a difference by cycling across the United States while raising money for a cure and awareness of this disease.


The journey starts on May 15 but you don't have to wait until then to show them you support what they're doing.  Go to www.moveforals.com to learn more about them, Tony Judt (the inspiration for the ride) and to lend your support - either moral or monetary.



Monday, March 22, 2010

Thanks for your support!

Thank you to everyone who contacted their Representative to help increase funding for the National ALS Registry. 


According to Kristy Koon with the ALS Association, thanks to your outreach, nearly 40 Representatives signed the letter to the House Appropriations Committee urging them to increase funding for the Registry. That's 10 more Representatives than last year, a year in which Congress increased funding for the Registry by 20%! Your outreach is making a difference!


Thursday, March 18, 2010

Please Contact Congress Today: Less Than 48 Hours Remain to Sign Dear Colleague Letter


Thursday, March 18, is the last day your Representative can sign onto the ALS RegistryDear Colleague letter , which requests Congress to continue funding for this vital research program. Please contact your Representative today and ask him/her to sign onto the ALS Registry Dear Colleague letter. You can contact your Representative from our website here: http://capwiz.com/alsa/home/


The National ALS Registry is a critical tool in the fight to find what causes ALS and how it can be treated and ultimately cured. And while Congress has funded the Registry in the past, our success this year will depend in large part on the number of Representatives who sign the ALS Registry Dear Colleague.

So please, contact your Representative TODAY and urge him/her to sign the Engel-Terry Dear Colleague letter. Let Congress know that people with ALS, who have no effective treatment option available, can't afford to wait.

Thank you!!

ALS Registry Dear Colleague letter
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Dear_Colleague__FINAL_.pdf

Additional information about the implementation of the National ALS Registry
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Update__March_2010_.pdf 

A Giving Spirit Foundation appreciates your efforts in helping to finding a cure for ALS!

Thursday, March 11, 2010

2010 Mario Palumbo ALS Research Gala

There are many amazing organizations around the world whose mission is to find a cure for ALS.  Mario Palumbo ALS Research  is just one of them.

If you're in the Charleston, WV area on Saturday, March 13, we hope you'll attend!



The 2010 Mario Palumbo ALS Research Gala is being held March 13, 2010 at the Berry Hills Country Club in Charleston, WV. This event will include cocktails, hors d’ oeuvres, and both silent and live auction items donated from West Virginia businesses and music entertainment by pianist Bob Thompson.

This year the Mario Palumbo Ethics Award is being presented to Jed Smith. All proceeds from the Mario Palumbo ALS Research Gala will be applied to the funding of research efforts into finding effective treatments and a cure for amyotrophic lateral sclerosis (ALS or Lou Gehrig’s disease).

Sponsorship Opportunities:
Title - $10,000
Gold - $5,000
Silver - $3,000
Bronze - $1,500
Individual Tickets - $100

For more information, please call the MDA office at (304) 344-9807.

Sunday, March 7, 2010

It's a good day to support AGSF


Approximately 14 cases of ALS are diagnosed each day. Most who develop the disease are between 40 and 70 yrs of age. The average expected survival time for those suffering from ALS is 3 to 5 yrs.


Any day is a good day to give a donation to A Giving Spirit Foundation.  You can donate by credit card using our secure site by clicking the Donate button in the upper right corner.  Or, mail a check to:

A Giving Spirit Foundation
PO Box 494
Davidson, NC  28036