Showing posts with label ALS Association. Show all posts
Showing posts with label ALS Association. Show all posts

Monday, October 27, 2014

2014 Annual Letter

What a difference 6 years makes. 

Six years ago, Laura Somerville Woodall had an  idea that her friends and family could make a real difference in a person’s life.  They were already making a difference in Laura’s  life through  their care, support, and love after her diagnosis with ALS.

Six years ago, Laura asked these friends and family to support her idea. She knew that women out there who have been given devastating news might not have the support system that she had.  These women - these mothers living in our community - would need help to get them through the hardest times.  They would need financial support to help pay for rent, mortgage, electricity bills, medical equipment, and medical bills.  They would need you.  They would need us. 

Six years ago, a seed was planted. 

What started out as a group of 25 friends is now a group of like-minded supporters over 700 strong.  And these are just the ones we know about.  Every dollar stuffed in our donation jar during Davidson Town Day, the Davidson Farmers Market, and other Awareness Month events by people learning of AGSF right at that moment means rent to a grant recipient.  We might not know their names, but they heard what AGSF does  and decided Laura’s idea was worth the investment.

Six years ago, two local mothers were given financial assistance and were able to focus on their health and their families instead of the mounting bills.  And since then, 22 mothers have been given that same opportunity.  In six years, over  $73,000 has helped these families do what Laura intended when she dreamt of this Foundation – focus on the family, focus on getting better and have relief from the financial stress and burden that comes with a debilitating disease.  In 2014, over $21,000 has gone toward mothers like Mrs. S of Charlotte.

Mrs. S., mother of a 14 year old, had already lost her car and home during her second round of breast cancer surgery.  She’s now in treatment for Lymphadema and the financial stress is taking a toll on her health in other ways as well. She has sleepless nights at the fear of losing her home.  Rent or treatment, that’s the choice so many face in situations like these. When she learned that AGSF would pay two months of her rent, she cried on the phone.

Mrs. S then wrote this to AGSF: “Words cannot express how thankful we are to all of you. Thanks for caring and being there for us during a great need in our life.  Thanks for giving us home for tomorrow.  Our hearts are forever grateful to you. God bless all.”

AGSF will continue to support research organizations until there is a cure for ALS. Nearly $10,000 has gone directly to these organizations since 2008, including over $2300 raised during the Shut Down for ALS challenge on May 18th and the amazing ALS Ice Bucket Challenge that overtook the world this August.  

Once again, we thank all of you who have nurtured the seed and been with us as it has grown and taken root. 2014 saw another successful AGSF Awareness Month, a community cookbook created by friends of AGSF for friends of AGSF, the Shut Down for ALS event, and the ALS Ice Bucket Challenge movement.

AGSF and Monkees of Lake Norman partnered for their own Wine Bucket challenge – all of the fun, none of the ice water – and the end result was a fun night out and many new pairs of Frye boots on the feet of Davidson residents!

In 2014 we introduced the AGSF Teen Council – a group of dedicated local teenagers who know the meaning of service and are intent on fulfilling the AGSF mission.  Their 24-hour Walk Around The Clock event raised over $10,000 that will go directly toward local mothers needing assistance when health issues impact the family financially.  A huge shout out to Chair Lexi Powers, Chair-Elect Daryl Konstandt and the entire AGSF Teen Council for their time and energy and dedication to AGSF!

And here we are, entering year seven.  We’re planning on continuing the good work started six years ago.  We’re planning on ensuring sustainability for the next six years and beyond.  Your support ensures that Laura’s vision continues to be a reality, helping those who need it most. 

How can you help?  Send your tax deductible donation today!


Sincerely,


A Giving Spirit Foundation Board of Trustees

Sunday, April 14, 2013

Get Ready for AGSF Awareness Month!

We're gearing up for our 2nd Annual A Giving Spirit Awareness Month to be held in May, 2013!  Last year was a success and local businesses showed their support throughout the month by hosting events and donating proceeds from sales.


AGSF Awareness month is planned for the month of May to coincide with ALS Awareness month, Mother’s Day and Laura Somerville Woodall's  birthday.  

A Giving Spirit Foundation (AGSF) provides financial assistance to deserving mothers in the Davidson and greater Charlotte, NC area who are suffering from a debilitating disease or other unforeseen health challenge.  AGSF also supports research organizations searching for a cure for Amyotrophic lateral sclerosis (ALS), like Project ALS and The ALS Association.  AGSF is a 501(c)(3) charitable organization.

AGSF was founded in 2008, soon after Laura Woodall was diagnosed with ALS. Laura quickly realized that one of the most challenging parts of living with disease is the toll it can take on the family, mainly due to the new financial pressures that come with ongoing  health issues. That realization prompted her to take action and ask friends to form A Giving Spirit Foundation.

Local businesses that will be holding events this year are Carrburitos, The Village Store, Davidson Farmers Market, Raeford's Barber Shop, Ben & Jerry's and Flat Iron Grill.   We're in discussions with more businesses and anticipate a full month!  The May events calendar will be published as soon as details are finalized.

To stay up to date on the May events, please  like the AGSF Facebook page.

If you would like to know more about AGSF, be a volunteer or request a grant application, please contact agsf@agivingspirit.org.

Friday, September 30, 2011

"They made me feel like somebody."

September 26, 2011

Dear Friends of A Giving Spirit Foundation,

“What do you say to a mother battling life-threatening cancer when she says ‘We will be homeless, me and my kids’ as she shares the journey of her darkest hour. With eviction looming overhead and not a resource in sight, my patient thought the situation was hopeless. She was ready to give up. Until A Giving Spirit Foundation stepped in to shine their light. To say thank you to what I consider a group of angels on Earth is not enough and I wish I could capture the tears of joy and expression of gratitude that patients share upon receiving news they have been blessed by a grant from A Giving Spirit. It’s like having the front row to watch a miracle take place. One particular mom exclaimed ‘they made me feel like somebody.’ What can you say to that? To all the angels of A Giving Spirit Foundation, my deepest gratitude for shining your light, making miracles happen and giving my patients the precious gift of hope.” Mellisa Wheeler, Blumenthal Cancer Center

Mellisa Wheeler understands all too well the stress that families feel when the mother has been diagnosed with a debilitating disease and the family does not have the financial resources to pay for healthcare and choices need to be made between the mother’s health and the basics like rent and groceries. As the American Cancer Society Patient Resource Navigator for the Blumenthal Cancer Center in Charlotte, NC, she sees this pain and struggle every day. Fortunately, A Giving Spirit has been able to ease the burden for three of her patients this year and the gratitude that these mothers have expressed make it clear that there is a need for A Giving Spirit Foundation in the greater Charlotte community.

Every person receiving this letter deserves some of this gratitude. Without your support, AGSF would have been unable to bring relief to the many families that have received grants over the last three years. In the past year, AGSF has awarded over $13,000 in grants to these deserving families.

Operating under the vision of Laura Woodall, A Giving Spirit Foundation strives to lend a helping hand to deserving mothers in the Davidson and greater Charlotte, NC communities suffering from a debilitating disease or other unforeseen major health challenges. Of equal importance is supporting research organizations who are searching for a cure for Amyotrophic lateral sclerosis (ALS). Organizations like Project

ALS, The ALS Association and the ALS division of MDA do fantastic work and are making advances every day. AGSF is proud to support them. AGSF donated $1500 to these organizations over the past year to go directly toward ALS research.

Laura says it best: “It was the invitation from friends and my opportunity to give back that embarked a journey which has proven worthy. A Giving Spirit Foundation (just three years young) has given to individuals who needed assistance, has given to research, has created a board to guide the mission, and has successfully hosted three fundraisers. It is my and my family's hope that this foundation continues to give back. My vision is that A Giving Spirit Foundation will persevere for years to come. Your support will drive that vision. If you find yourself in a position, when you can give or want to give... I strongly encourage you to give to A Giving Spirit Foundation. My wish is that you become a giving spirit.”

For the past several years, AGSF has raised the majority of our funds through the annual Autumn Fest event. Last year’s event raised over $12,000 from attendees, silent auction bidding and donations from supporters unable to attend the event. Again, we thank you all for your contributions last year! A big special thank you goes to Kelly and Steve Gentry, who hosted the event at their beautiful home, local bands Sunday Union and Billy Jones who kept everyone entertained, and especially to the many wonderful women and men on the AGSF volunteer committee (led by Kim Fleming and Melissa Reddick). These people spent countless hours organizing this phenomenal event and it could not have gone more smoothly.

So, we’re giving our volunteers a year off this year from planning the big event. Instead, we’re going to treat this as a building year. We’re working on strengthening relationships in the community and learn how to build a stronger organization that can raise money year round and not be dependent on one large annual event. We’re here for the long haul so that we can realize Laura Woodall’s vision by continuing to make the lives of deserving mothers in the community facing a health challenge a little bit easier.

If you have fundraising ideas or experience and would like to become more involved, please email us at agsf@agivingspirit.org.

“They made me feel like somebody.” And that, my friends, is why we do this.


Sincerely,


The AGSF Board of Trustees

Wednesday, August 11, 2010

Thanks to the ALS Association for spearheading this effort.  Please join them in helping make the Senate understand why funding is imperative toward finding a cure for ALS.

Advocate for a Treatment this August

As Congress heads home for their summer recess (mid-August to mid-September), we need your help to double funding for the ALS Research Program (ALSRP) at the Department of Defense. This vital program is specifically designed to find a treatment for ALS.

The House Defense Appropriations Subcommittee recently voted to increase funding for the ALSRP to $10 million, a more than 30% increase over last year! While this is great news, much more must be done. Last year's funding of $7.5 million is expected to only fund four projects. And that’s why we need your help. We want the Senate to double funding to $15 million for the program when they return to Washington in September.

In order to accomplish this goal, ALS Association Chapters and advocates across the country are meeting with Senators throughout the recess to build support for the ALSRP. But your Senators need to hear from you! In fact, your outreach will send a loud and clear message to Senators that people with ALS all over the state need a treatment today. That we don’t have time to wait. That more funding is needed!

Please visit the Advocacy Action Center of our website (http://capwiz.com/alsa/home/) and urge your Senators to provide $15 million for the ALSRP in 2011. And contact them today. While the recess begins this week and will continue until mid-September, don’t wait to email your Senators. Contact them today and help find a treatment and cure for ALS!

Monday, May 10, 2010

May is ALS Awareness Month



If you ask someone if they know anything about ALS (Amyotrophic Lateral Sclerosis), most will ask if that's the disease Lou Gehrig had.  The answer is Yes, but there's much more to know about this disease:
  • Approximately every 90 minutes, ALS  claims the life of one American.
  • 5600 people in the US are diagnosed with ALS each year.
  • ALS affects 2 per 10,000 people.
  • As many as 30,000 Americans may have the disease at any given time.
  • ALS occurs throughout the world, with no racial, ethnic or socioeconomic boundaries.

To learn more about how ALS affects people just like you, read "ALS - Anyone's Life Story" on www.als-mda.org


There are many wonderful organizations fighting for a cure, a few are listed below.  Please, help raise funds and awareness in May or any other month of the year.

Sunday, April 11, 2010

Upcoming "Walk to Defeat" ALS Events

Spring is here and everyone is looking for reasons to be outside.  What's a better reason than participating in a "Walk to Defeat ALS" in your area?


  • The Walk to Defeat ALSTM is the national signature event of The ALS Association.
  • Approximately 150 Walk events are held across the country each year.
  • Over $80 million has been raised through the Walk program since its inception in 2000.
  • Each year over 120,000 families, businesses and volunteers participate in Walk events.
  • Walk events fund vital patient services programs and cutting-edge ALS research.
  • There is no registration fee to participate in a Walk
We've missed some walks this Spring but it's not too late to join up for those in the Winston-Salem, Wilminton and Charlotte, NC areas:

April 17, 2010:


April 24, 2010:

Monday, March 22, 2010

Thanks for your support!

Thank you to everyone who contacted their Representative to help increase funding for the National ALS Registry. 


According to Kristy Koon with the ALS Association, thanks to your outreach, nearly 40 Representatives signed the letter to the House Appropriations Committee urging them to increase funding for the Registry. That's 10 more Representatives than last year, a year in which Congress increased funding for the Registry by 20%! Your outreach is making a difference!


Thursday, March 18, 2010

Please Contact Congress Today: Less Than 48 Hours Remain to Sign Dear Colleague Letter


Thursday, March 18, is the last day your Representative can sign onto the ALS RegistryDear Colleague letter , which requests Congress to continue funding for this vital research program. Please contact your Representative today and ask him/her to sign onto the ALS Registry Dear Colleague letter. You can contact your Representative from our website here: http://capwiz.com/alsa/home/


The National ALS Registry is a critical tool in the fight to find what causes ALS and how it can be treated and ultimately cured. And while Congress has funded the Registry in the past, our success this year will depend in large part on the number of Representatives who sign the ALS Registry Dear Colleague.

So please, contact your Representative TODAY and urge him/her to sign the Engel-Terry Dear Colleague letter. Let Congress know that people with ALS, who have no effective treatment option available, can't afford to wait.

Thank you!!

ALS Registry Dear Colleague letter
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Dear_Colleague__FINAL_.pdf

Additional information about the implementation of the National ALS Registry
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Update__March_2010_.pdf 

A Giving Spirit Foundation appreciates your efforts in helping to finding a cure for ALS!

Saturday, June 27, 2009

ALS Advocacy - Call To Action

An Important Request from the ALS Association, Jim "Catfish" Hunter Chapter
**ALS ADVOCACY - CALL TO ACTION**
Dear Friends,
As you may recall, we sent out an email two weeks ago asking you to call your Representative and Senator to ask them to reinstate the $400,000 annual funding that was cut from the House version of the state budget. We had an outpouring of support and the Chair of the Health and Human Services (HHS) Committee presented an amendment to reinstate a portion of the funding in the final version of the House budget. Unfortunately the House defeated the measure but this tells us that our collective outreach was heard by one of the most important members of the House HHS committee!

WHAT NEXT?
Now the details of the budget are being worked out in a special conference committee made up of appointed members of the Senate and the House. We have an opportunity to be reinstated if we can convince them that this is important enough.

We need you to call or email the Representatives and Senators listed below to let them know that if they do not fully reinstate this funding ($400,000 recurring), it will be devastating for people with ALS and their families inNorth Carolina. The ALS Association would be forced to cut vital programs and services including ALS clinic funding. North Carolina would, in a sense, be abandoning and turning its back on what many people believe to be its most vulnerable citizens. We need these calls to be made or emails to be sent as early in the week as possible.

I have listed the contact information below for the people who will be deciding the HHS budget. I have also included a sample phone script. Please take the time now to call or email each person listed below.

You should know that since the NC General Assembly approved the $400,000 recurring grant in 2005, many wonderful things have happened for people suffering with Lou Gehrig’s disease in NC. I have highlighted a few of these advancements below:

Number of PALS receiving services:
In 2005: 150
In 2008: 300 +(There are thought to be 700-900 patients in NC)

Support Groups:
In 2005: 9
In 2008: 13
(Located throughout NC)

Medical Equipment Closets
In 2005: 1
In 2008: 4
(Located throughout NC)

Care Services Staff
In 2005: 2
In 2008: 4
(Helps PALS secure services, provide counseling services and training for families, hospices, nursing facilities and hospitals to provide better care for people with ALS.)

Patient Support Grants:
In 2005: $31,000
In 2008: $201,000
(This increase includes assistance for in-home care, transportaion services and assistive technology equipment).

ALS Clinic Support:
In 2005: $65,000
In 2008: $247,000
(We added a new clinic in eastern NC and greatly incrased funcing to others)


Senate HHS Appointees
1. Sen. Doug Berger; (919) 715-8363, Doug.Berger@ncleg.net
2. Sen. William R. Purcell; (919) 733-5953,William.Purcell@ncleg.net
3. Sen. Martin L. Nesbitt, Jr.; (919) 715-3001,Martin.Nesbitt@ncleg.net
House HHS Appointees
1. Rep. Beverly Earle; 919-715-2530, Beverly.Earle@ncleg.net
2. Rep. Dr. Bob England; 919-733-5749, Bob.England@ncleg.net
3. Rep. Verla Insko; 919-733-7208, Verla.Insko@ncleg.net(PLEASE THANK HER FOR LEADING THE HOUSE EFFORT TO REINSTATE OUR FUNDING)
4. Rep. Jeff Barnhart; 919-715-2009, Jeff.Barnhart@ncleg.net
5. Rep. Jean Farmer-Butterfield; 919-733-5898, Jean.Farmer-Butterfield@ncleg.net
6. Rep. William D. Brisson; 919-733-5772;William.Brisson@ncleg.net
7. Rep. Randy Stewart; 252-443-6923; Randy.Stewart@ncleg.net
8. Rep. Jennifer Weiss; 919-715-3010; Jennifer.Weiss@ncleg.net
If they cannot work out their differences in committee then it will go to:
1. Speaker of the House; Joe Hackney; 919-733-3451,Joe.Hackney@ncleg.net
2. President Pro-Tempore of the Senate; Marc Basnight, (919) 733-6854,Marc.Basnight@ncleg.net

SAMPLE PHONE SCRIPT:
Representative/Senator __________, My name is ________________ and I want to talk to you about the $400,000 annual funding that is in jeopardy of being cut for people with ALS.

This is such a small amount in the HHS budget but it represents a very large part of the ALS Association’s budget. Elimination of this funding would sever a lifeline for North Carolina’s most vulnerable citizens.

If you do not know what ALS is, many consider it to be the world’s worst disease. (BRIEFLY SHARE YOUR CONNECTION).

Please, do whatever you can to protect the entire $400,000 appropriation. Eliminating any part of it would be too much. If you cut this funding from the budget, the ALS Association will have no choice but to significantly cut programs like respite care, transportation assistance, assistive technology access and worst of all, ALS clinics. This would be devastating to the many people who count on these critical services. I know you have to cut somewhere but please do not take away these services for people with ALS when they are already dealing with the biggest crisis of their life.

Thank you for your time and more importantly your support!