Thursday, March 18, is the last day your Representative can sign onto the ALS RegistryDear Colleague letter , which requests Congress to continue funding for this vital research program. Please contact your Representative today and ask him/her to sign onto the ALS Registry Dear Colleague letter. You can contact your Representative from our website here: http://capwiz.com/alsa/home/.
The National ALS Registry is a critical tool in the fight to find what causes ALS and how it can be treated and ultimately cured. And while Congress has funded the Registry in the past, our success this year will depend in large part on the number of Representatives who sign the ALS Registry Dear Colleague.
So please, contact your Representative TODAY and urge him/her to sign the Engel-Terry Dear Colleague letter. Let Congress know that people with ALS, who have no effective treatment option available, can't afford to wait.
Thank you!!
ALS Registry Dear Colleague letter
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Dear_Colleague__FINAL_.pdf
Additional information about the implementation of the National ALS Registry
https://ssl.capwiz.com/alsa/attachments/2_ALS_Registry_Update__March_2010_.pdf
A Giving Spirit Foundation appreciates your efforts in helping to finding a cure for ALS!
